Monday, September 8, 2008
September 8, 2008
Here is the very long overdue blog update. I apologize for the delay and hope you can forgive me:) The summer has flown by and now the kids are back in school. Garrett is in the 4th grade and has started soccer. Erica is a big kindergartner now and is loving it. She starts her Fall dance lessons soon.
The summer has been filled with lots of rehab. I go to Lenox Baker for physical therapy twice a week and now I also have a third visit each week in the pool. The pool therapy seems to be helping with my balance a lot. I also have speech therapy twice a week at Rose Manor to work with the vital-stem electro-therapy to increase my swallowing capability. The golf tournament was an incredible success and I want to thank all of you that participated in any way. It was so nice to see all of my friends together after being in the hospital for so long. You all are the greatest friends a guy could have:)
Progress on my recovery has slowed a little but I am still working hard and improving. I have started using a four post cane to walk at therapy and for short distances at home. This has been very motivating and I hope to continue the use of the cane for more walking. I have my next follow-up with Dr. Friedman on Dec 30th to check for any remaining parts of the tumor. Let's keep the fingers crossed that there is no tumor remaining. I will hopefully have my next swallow test in a couple of weeks. I think it will show improvement in my swallowing once again.
I have been able to get the kids ready for school in the morning and get them to the bus stop before I head to my therapy appointments. Over the summer Katie McCabe drove me to my appointments and since she started back to school her mom Amy has kindly stepped up to help get me to all of my appointments. I couldn't do it without them. I promise to keep more regular updates on my progress going forward. If you wish to email me please free at ewlacey@yahoo.com. I hope you all are doing well and I look forward to talking to all of you.
Deepest Thanks for all of Your Love and Prayers,
Eric
Friday, July 11, 2008
July 11, 2008
Hey guys! I'm sure everyone is wondering why in the world we haven't updated the blog since the golf tournament. Eric wants to take over the "writing" portion but still is having problems with his vision, so it's not an easy task. We keep trying to sit down for a dictation session but that isn't working either sooooo, I thought I'd write a quick note. Eric passed his last swallow test so he's able to eat now!!!! He's back up to 160 pounds!!!!!! Can you say EATING MACHINE? He can't get enough food these days and loves sweets now (something that he never cared for before the stroke). Interesting, huh? He eats ice cream with a pop-tart covered in whipped cream! I know ladies... we can gain weight just reading that. Thus, why he's putting on so much so quickly. ;) He's also taking amino acids to build muscle and is still on the testosterone patches. I keep telling him he's going to pull a Hulk move soon and bust out of his shirt. I've attached a picture taken the 4th of July to show how much weight he has put back on. He's starting to look like his old self. He's still attending therapy every week working towards getting out of the wheelchair. The golf tournament was a HUGE success and so much fun. Thanks to everyone that supported us. It was the happiest I've seen Eric since he returned home. We're so blessed to have such wonderful friends and family. Just amazing.... For you Indiana folks, Eric will be coming back to "the Burg" for his 20th high school reunion (without me and the kids) for a fun, long, bachelor's weekend. He's excited to see all his fellow high school buds! Thanks again for everyone's love and support. Eric wouldn't be making the strides that he is without it.
Monday, June 9, 2008
June 9, 2008
Hey All. Just a reminder - The Golf Tournament is fast approaching. June 24th is in two weeks, and we are gearing up for a day of fun and friendship. If you want to participate, there is still time to sign up, and there are still slots available.
Also, Blue Corn Cafe on Ninth Street is hosting an after - tournament party. A percentage of all proceeds will be going to the Lacey Fund, so plan on stopping by and having a margarita, and maybe some dinner. (The margs are unbelievable, and the fajitas are the best in the area!) Party will be from 4PM until 8ish.
Chris Morris adds -
We have a great "live" band set to play from 5 til 8 at the Blue Corn Cafe'...if you are planning to come to the after party please RSVP me at cmorris@brookslumber.com or call me 336-254-0554.
Friday, June 6, 2008
June 6, 2008
Eric is getting settled into his new routines and therapies. He's getting around good at home in the wheelchair, other than a couple of mishaps that happened over the weekend. He said he wished I had a picture of this one for the blog…. He was outside with the kids while they were washing the car and Eric's wheel rolled backwards, tipped over and Eric landed on his back in the mulch and bushes. He was like a turtle on his back - couldn't move. Erica ran in to tell us and of course Carol and I ran out like wild women only to find Eric laughing saying he was okay. Scared us to death!!! He also fell the next day while walking (assisted by Carol) with his walker. She left his side for 2 seconds to grab the wheelchair and over he fell. This time wasn't so funny. He hurt his back and smacked his face on the floor. The therapist told us at DRI not to be surprised if he falls. It's going to happen and is part of learning to walk again. Needless to say though, with his weight loss and weakened bones, he could easily break something so it scares us. He had another swallow test earlier this week and passed with flying colors so he was able to move to pureed foods. He "ate" so much that he made himself sick. The tube feeds will continue but they will decrease in quantity as he's able to eat more. Pureed chicken casserole isn't the best looking stuff but Eric said it was the best thing he's ever tasted. :) He's gained more weight - actually up to 135 pounds! I told him tonight he was getting a belly! Ha-ha He's adjusting better than I would be given all the circumstances. I'm proud of him and what he's accomplishing. He's very determined to get better and that's all we can ask for.
Thursday, May 29, 2008
May 29, 2008
HE IS LARGE AND IN CHARGE…..
Mr. Lacey is all settled in at home. He is happy, assertive and ready to continue the BIG SHOW. He and Carol have already hit the town. Eric's not content to sit at home - he wants to get out and visit. He impressed all the Kroger employees (his favorite shopping spot) yesterday when he showed up. Carol said they were all so excited to see him and so impressed with how well he's doing. We're still waiting to hear back from Lenox Baker (physical therapy) and Rose Manor (speech therapy) for his appointment times but he should start outpatient therapy next week. Home Health came in and basically confirmed that Carol was a registered nurse and knew what she's doing. ;) She passed the test and they're not coming back. We've got the medication schedule down pat. He's on 18 medications so it took a spreadsheet to organize it all.
Our house is open to any and all visitors. Don't think that it has to stop just because he's no longer in the hospital. He would love nothing more than to socialize. Come on and see us!
We visited everyone at Select before leaving the hospital Tuesday. The doctor there said Eric should be a motivational speaker, telling his miraculous story. What a great idea! I told him he should go into occupational or physical therapy or teaching. Either way, we all know something positive should come from this. It's an experience too precious not to share.
Tuesday, May 27, 2008
May 27 2008
Carol and I are heading up to get Eric discharged. He's so fired up and ready to come home. The kids have a bazillion games lined up to play with him... They're really excited to have Daddy coming home. All of the equipment has been delivered with the exception of the wheelchair which is due in an hour.
Carol and I have had lots of training plus Home Health starts coming tomorrow. He'll have therapy at the house for 2 weeks, then will start traveling to outpatient therapy for speech (swallowing) and physical therapy. He has another baseline swallow test in a couple of weeks but for now can still just have thickened liquids (which include smoothies - his favorite). Carol is worried that its going to be hard for him when we cook/eat. I didn't think about that. We'll try to eat only healthy, bland foods. :) Maybe that will help our diet efforts. Anyway, we'll post later once he's settled. I'll dictate a note from Eric....
Wednesday, May 21, 2008
SWIM-A-THON!
The Black Horse Run Racers are sponsoring a weekend swim-a-thon on Saturday, May 24. If you are interested in either participating in this event or sponsoring a swimmer, follow the Swim-a-thon link for more information. All donations, however large, are appreciated!
Tuesday, May 20, 2008
May 20, 2008
Well, let the games begin. Eric is definitely coming home Tuesday. I'm spending the day Friday getting my RN and PT license at the hospital. :) Everyone has started calling to delivery everything from equipment to Nutrition and all the bells and whistles that go along with it. They want Eric to come home Thursday evening for an hour to assess the home to ensure nothing additional is needed. Then we have from Friday - Tuesday to take care of anything that needs attention, whether it be a ramp, bathroom alterations, etc. Can you hear the stress as I type? I'm scared to death. As involved as Carol and I have been, nothing has prepared us for this. Home Health will come in until they feel confident that Eric can handle going to an outpatient facility for rehab. He has another swallow test the end of next week to see if he's ready for the next level. He is now only drinking "nectar" consistency liquids.
There are so many different stages to all of this. In the beginning, we feared that he would never overcome ventilators or even make it through the night. In three short (but LONG) months, he's made so much improvement. The discharge coordinator said today that "he inspires all of us - employees and patients". That's a pretty cool thing, isn't it? He's so driven now. He's very focused on changing and improving now. As I mentioned before, they removed his trach and now there's just a band-aid (another thing that blows my mind). At times, his voice sounds just like it did before.
Please continue to pray for us… all of us. Each week brings us a new set of challenges that we must overcome and adapt to. Our friends (the Johnsons and the Whites) have organized a community Swim-A-Thon this Saturday for the kids at our pool (Black Horse Run) from 10:00 to 12:00. Please come out and cheer on our little swimmers. Eric will be there too. We got a "hall pass" for him to leave DRI for a few hours. He can't wait.
Friday, May 16, 2008
May 16, 2008
Eric is still making great progress. His trach was removed today!! He's so happy… There's a good size hole that will take time to heal so he's speech is a little impaired because air is escaping through the hole. He had another swallow test and that continues to show improvement. He continue to drink thickening juices, yogurt drinks, V8's, etc. He is really ready for food but that's going to take some more time.
Physical therapy is going well! Eric's is being spotlighted by the hospital for his improvements in a marketing piece. A photographer was snapping shots of him on the treadmill. They have some really cool equipment at the gym in DRI. There is a sling that literally allows Eric to stand but only puts 30 pounds of pressure on his legs. He can practice walking… getting his right leg to cooperate and picking his foot up. He's been wearing a brace on his weak leg to help support himself. He continues to walk with the walker and even climbed some low grade steps today! He held the railing and did side steps. He said it was a challenge but he managed to accomplished it!
He's gained a little weight (up to 124 pounds now) which is encouraging. He's excited about the golf tournament and plans on attending to shake everyone's hand and thank them personally. You guys are amazing. Tom and Chris are working so hard to make this a very special event. We can't wait! Thanks for everyone's support… We love you so!
Friday, May 9, 2008
May 9, 2008
Another great day!! Eric walked with assistance (this time I got to watch) and got to drink a yogurt drink! He spoons it into his mouth and turns his head to the right when swallowing. He gets it down the right pipe when he turns his head. :)
His gastro doc stopped in to see him today and was so amazed at Eric's progress. Its so cool to see folks reactions when they see him sitting there smiling back at them. I asked him if he had any idea what a miracle it is to take steps again and he said no, he was just doing his best.
He sent ME flowers to the hospital today for Mother's day. I couldn't believe it. What a sweetie, huh? Speaking of that, Happy Mother's Day to all you Moms out there. We wish everyone a great weekend!
Thursday, May 8, 2008
May 8, 2008
Eric walked 65 feet today with his walker. He's surpassing all of their goals. His physical therapist said today that she was having to set more aggressive goals for him because he's doing so well. His voice is stronger too! He's talking non-stop. He passed his first baseline swallow test and they let him have thickened sweet tea and this morning they gave him semi-frozen apple juice this afternoon. He said it was the BEST thing ever. :) I didn't realize its easier to swallow thicker liquids and that water is the most difficult thing to swallow. He has the Level 2 swallow test next week. He's in great spirits and is the life of the party here at DRI. He loves everyone he's working with (and so do we)!!
Tuesday, May 6, 2008
May 5, 2008
Well--I'm reporting from Nashville but I heard something really exciting yesterday!! Carol said Eric walked 50 ft with the assistance of a walker yesterday. His therapists were blown away. He's accomplishing things that he shouldn't be able to so. He told me that when I returned he'd be walking and man, I guess he was serious. He's giving it all he's got.
Monday, May 5, 2008
May 4, 2008
Eric is out of control these days… He's going outside in his cool new wheelchair, sitting alone, taking steps by himself in the gym with the assistance of the balance bars. He's going to be running a marathon before I know it. His accomplishments are astonishing to me. When his neurosurgeon told me he most likely wouldn't walk again, I took it at face value. I never told Eric, fearing it would discourage him. So while watching his rehab on Friday, I cried uncontrollable tears. I've probably experienced miracles in the past - not truly realizing they were miracles. But when it happens in front of you and you never thought you'd see it again, it's the most amazing experience. There's no doubt in my mind that God is holding his hand, helping him sit alone and balance himself… holding his legs steady while he takes those first steps… encouraging him to press on and have the will to keep going. He was full of laughter this weekend. Friday night, the kids, Carol, Tom and I sat in his room and cut up until we all had belly aches. It felt so normal. I haven't felt normal in a long time and trust me, it felt GOOD! Our friends Amy & Don visited too and we laughed until I thought Eric was going to have to have a breathing treatment!!! It was so much fun.
I'm leaving tomorrow for Nashville. Maybe I'll get lucky and see Keith Urban! I'm looking forward to a little break, even if it is meetings and such. Eric smiled and told me to have a good time while saying goodbye tonight. It's hard to leave him and the kids… Our lives have changed so much. Every now and then I sit back and take a deep breath wondering how in the world we got to this point. God has a plan. I just hold that near and dear to my heart and press on myself.
Wednesday, April 30, 2008
April 30, 2008
I am assuming that Eric has been busy this morning. Each afternoon he gets a schedule for the following day of times when he has therapy. This morning, I've called twice and he hasn't answered so either he's working hard or worn out and avoiding the phone. :) He's so worked up and excited about getting his strength back. The boredom has set in though and Eric wants me there every night so we can hang out. Garrett is not digging this. He wants Mom home with him so I'm torn between my men. I'm leaving Sunday for our National Sales Meeting returning home Wednesday night so while I'm away, you guys keep him occupied. He'll be so lonely!!
A good friend of mine (Jen Ren) sent me a link for a 20 minute video of a woman that had a stroke. She was a neuro-scientist and recalls her stroke in detail as it was happening. It's pretty moving. Eric and I watched it Monday night and he said from what he remembers from the onset, that she nailed it dead on. I thought I would pass along the link... create some awareness.
http://www.ted.com/talks/view/id/229
April 30, 2008
For those of you that haven't seen Eric, say in the past week, please stop in for a visit. You'll be pleasantly surprised. He is a different person. His attitude and desire to get through this are shining through. His speech has improved so much that you won't have any problems understanding him anymore. He played cards with his son last night. He's using his right hand to hold things, such as cards, papers, etc. He wasn't able to do that a week ago. His right leg is getting stronger too. This morning, the Occupational Therapist put Eric in the wheelchair and rolled him in the bathroom and said "let's see what you can do". He washed his face, brushed his teeth and put on cologne. (You know he's GOT to smell good!) This is the first time he's done any of this. The guy joked with him and said he didn't really need therapy. He helped Eric get his clothes and he got dressed. He spent time with the new therapists today (Occupational, Speech, Physical and Recreational). He also spent time with the Dietician. He's very happy with the facility and the people although he misses the girls downstairs at Select. Susan, Kim and Martha stopped in on their lunch break for a visit. It's amazing the changes that we're seeing take place before our very eyes. Just amazing.
Eric's at the same address:
Durham Regional Hospital
3643 North Roxboro Road
Durham, N.C. 27704
Room # 7320
Phone: 919.470.7320
To send an email:
http://www.durhamregional.org/patient_visitor/Ecard
Monday, April 28, 2008
April 28, 2008
While walking to my car tonight, I realized I haven't updated you guys on Eric for several days. Tonight, I spent the evening packing up all of Eric's belongings. Connect Four that he and Carol play during the day, the Bible that my cousin Karen brought for him, all the pictures of the kids and me & Eric… it's been one of those "feel good" nights.
Eric's going to the Durham Rehab Institute tomorrow. Friday was an emotional day full of doubt and frustration as his Case Manager told me that Eric was not approved by the insurance company to go to rehab. The insurance company felt he was not ready to leave Select and that going to rehab would be risky and he might not be strong enough to endure three hours of rehab a day. We learned all of this after the awesome tour that we had Friday given by the Director of DRI and after Eric had his hopes so high that he couldn't stop smiling. When we heard the news that he wasn't able to go, he looked as if someone sucker punched him. Carol and I left the hospital hoping that something or someone could change this decision.
I got a call from the hospital around 6:30. It was Eric. He was so excited telling me he was going Monday… of course I reminded him that the insurance company denied it, blah, blah, blah and he said "listen to me… I'm going". His case manager got on the phone and was telling me it was true! Eric's doctor and the doctor at DRI both called Cigna and convinced them that Eric was truly ready. We all screamed and laughed together and Eric's case manager "churned the butter and shook her groove thing". This is how Eric described it tonight. Also, his doctor stopped a particular medication that started at Duke. Miraculous things have happened over the weekend. The medication was causing depression, low blood pressure and a whole array of negative side effects. In two days, Eric's voice has returned. His secretions seem to be better, he has more energy and is using his right arm more.
It's like a miracle…. Another miracle. Scary to think a medicine that was prescribed to help him could affect him that way. He talked non-stop tonight. It was hilarious. It's like 2 months worth of things he's wanted to say crammed into 2 hours. :) He told me how happy it made him to spend every day with his Mom. This is something they've been unable to do since he was 18 and left for the Navy. He wanted to talk about the kids and the dog and all of our friends and Desperate Housewives… He asked, "when and how did Carlos go blind?" I'm sure there are days when he asks himself "how did I get to this point?"
Eric had a lot of visitors today. He absolutely LOVES seeing folks and said tonight it's good that people can finally understand what he's saying. I can't even begin to know how frustrating that's been for him. Once he's in his new digs, I'll post the room number. He's "movin' on up" to the 7th floor, hopefully by lunch time Monday. DRI is like a luxury condo! The rooms are HUGE and so nice. He said he was moving up to the Penthouse. He also told me tonight that he'll be home in 30 days. He made the 2 week prediction about leaving Select and nailed that one, so let's see if he's right about coming home. Our 10th anniversary is June 13. How cool would it be for him to be home and able to have dinner with his family? We're looking forward to that day. So tomorrow, Carol and I will decorate his new home with all the pictures, the beautiful lighthouse that Joann brought him and the infamous Hello Kitty CD player. To finish off a great Monday, we'll take Garrett & Erica up for a visit with their Daddy. I couldn't think of a better way to kick off the week.
Thursday, April 24, 2008
April 24, 2008
Hey guys! Things are at a pretty typical run rate with Eric. He's doing pretty good. He had a great evaluation yesterday. The Director of Durham Rehab Institute watched Eric work with his physical and occupational therapists. She asked Eric if he was ready to WORK and he said YES MA'AM!
We should know something by tomorrow if he's "moving on up" to the 7th floor into full time rehab by tomorrow. WE ARE SO EXCITED !! Keep your fingers crossed that this works out. We want to keep him close to home and definitely out of a Skilled Nursing Facility. He needs rehab, not nursing care. He told Susan (our friend and Occupational Therapist) that he wanted to push her in a wheelchair down the hall soon. Wouldn't that be fun?
I'm heading up there shortly to see him. Carol said he's smiling and happy today. He worked really hard yesterday to show them that he's capable of this and hopefully he'll see the benefits. I always knew Eric was strong willed but buddy… he is dedicated 110% to walking again, talking again, eating again and being an awesome Daddy again to the kids. The things we tend to take for granted are huge mountains for him. With our internal network of friends and the support he has and most of all prayer, I know he can accomplish it all.
Monday, April 21, 2008
April 21, 2008
Eric and Rhonda truly have some great friends. Chris Morris, a friend of Eric's from (where? - I don't know) called me up last week and said that he had been thinking about doing a golf tournament for Eric. One week later and - look to your right folks - the golf tournament is reality. Mark down Tuesday, June 24th in you calendars.
Chris has scheduled what sounds to be a fantastic day at the Hillandale Golf Course in Durham. For those of you that don't know, Hillandale is centrally located by Duke Hospital, between 85 and 147. It's easy to get to, and has one of the best Pro Shops in the country. (At least, that's what the lady on voice mail says while I'm on hold...)
Plan to attend. There will be golf, bar-b-que, a raffle, and a lot of fun. Additionally, we are discussing a silent auction. And it all goes to help a very good friend and his family. So stay tuned, 'cause there will be more information forthcoming.....
April 21, 2008
Eric's had a great day. He had a great workout with Physical and Occupational Therapy. He sat up in the chair for over an hour. His blood pressure was pretty good, dropping some towards the end but I danced in front of him a little and that helped. Ha-ha.
He is so ready to get stronger though. He never turns down a chance to work. What seems like simple stretching is a major work out for Eric. Just touching his thumb to each finger on his right hand is something he has to concentrate on. He was surrounded by his "work wives". He loves it. I told them today to keep doting on him. He'll improve quicker that way! :) His speech therapist worked a lot with him today. She had frozen, lemon swabs that she rubbed on the back of his throat to stimulate swallowing. He loved it.... Closest thing he's had to food in 2 months. Can you imagine? He's resting now. He's very exhausted and ready to nap.
Sunday, April 20, 2008
April 20, 2008
Sorry the posts haven't been coming every day… Eric is doing great! He is still working hard and wants to get stronger. Erica is going up today for a visit with him while Garrett is at Stephen's birthday party. We've started having more visitors and Eric is loving it!! Please feel free to drop by and say hello to him. He enjoys seeing everyone. We've had a couple of heart to hearts about things and he has the right attitude and optimism needed to get better. He wants to go to the rehab unit which is also in Durham Regional in a couple of weeks. He's setting goals… look out! His blood pressure seems to be doing better during therapy and his health is overall pretty stable. He's ready to get the show on the road!!!
Thursday, April 17, 2008
April 17, 2008
Eric is filling out!! He's a juicy 138 pounds now. Yee Haa! He was able to sit up in the recliner today and his blood pressure stayed in the normal range which is awesome!! I'm taking Garrett for a visit tonight..... Eric needs his fix (and so does Garrett). Eric and I had a good visit last night after being apart for a couple of days. He was very loving and affectionate. He's really getting his "normal" personality back. He's joking around a bit and starting to give everyone a hard time which warms my heart. Autumn and Carol are back. He was very excited to see them. Momma is always good medicine!! :)
Tuesday, April 15, 2008
April 15, 2007
Rhonda is out of town, so I am the guest writer today. I am sitting with Eric this afternoon, listening to him talk. This has become something of a common occurrence - I told him just last week that I had not heard him talk like this in eight weeks, and it is true -he is speaking clearer and with more force now than he has since he was admitted to the hospital.
It is certainly a welcome development. This is not to say that everyday is the same, or that the progress made puts him where he was before his surgery, but for me, it has been a very comforting experience to have a conversation with a friend about topics great and small, and know that just as I can make myself be understood, Eric will be able to make himself be understood as well.
Have a good evening.
Monday, April 14, 2008
April 14, 2008
Eric continues to get stronger each day. Today we made phone calls to his Mom, Jarrod and the kids. His voice was weaker than normal but I thought he should touch base with the "outside world". Carol and Tom went home today. (I already miss her). Carol and Autumn (Eric's sister) will be returning on Wednesday.
Eric had a very busy day yesterday. Susan (our friend and one of the OT's at Select) came up on her day off and worked with Eric. He got out of the bed and into the chair. He's having some issues when he sits up. His blood pressure drops considerably so they're having to use extra precaution. His pressure Saturday dropped to 80/40. He normalized after a few minutes but he was leaning back a bit rather than sitting so upright. Our friend Stephanie cut his hair and Carol and I scrubbed him up (manicure and all).
We had an awesome visit from my cousin Karen and her husband Paul. They brought two friends (Serena & Lynn) to pray with Eric. We all surrounded him, holding his hands, feet and head and prayed for God's healing powers to touch Eric. It was overwhelming and beautiful and comforting. The only way we can make it through this is to allow God to intervene. Sometimes it's hard to turn things over to Him but when you do, a peace falls over you and you realize things are going to be okay. After Eric's busy day, his buddies came to the hospital and had "boys night". Unfortunately he was so tuckered out, he slept a lot but I think they all had a good time anyway. (Thanks for then note in the Visitors Book guys… very funny) :)
Today was another busy morning. One of the Speech Pathologists came in to work with him. He's progressing very well - learning to swallow again and talking clearer. Each day brings more surprises which is really cool. His infections are clearing up and hopefully the kids will be able to visit this coming weekend. He's ready to work and regain his strength. He never turns down he chance to work with the physical therapists or speech (and especially not Susan, Kim or Cheryl). As tired as he is and despite the hip pain, he wants to continue therapy and work towards recovery. He has a realistic expectation of what's to come and time frames but hasn't once seemed frustrated. What a trooper…. I didn't realize until this weekend that you can send emails to Eric at Select. They print them and deliver to his room. I wanted to include the address so he could get "love notes" from all his girlfriends (Kirsten, Jenny, Casey, Lisa…) Good thing I'm not a jealous wife! Ha-ha. Thanks y'all.
http://www.durhamregional.org/patient_visitor/Ecard
Thursday, April 10, 2008
April 10, 2008
Tuesday, April 8, 2008
April 8, 2008
So, tonight, Mr. Lacey was trying to get me to break the law. We had a rough afternoon with nursing staff so I was trying to give in to his every need, want and desire… (Yes - those who know me? I can't hear you laughing!) I don't usually do that very well.
BUT - Eric tried a new thing today. Ice chips with a spoon. Mind you, he's not eating the ice chips. Their job is to cool the spoon off, then Eric sticks it on his tongue to cool it, then he practices swallowing. So here I come with a cup full of ice and a plastic spoon. He kept trying to tell me something so I put his speaking valve on and he said "METAL---- I need a metal spoon". Okay, so I didn't think about plastic not cooling off the way metal would. He told me, "go get a metal spoon and don't let them tell you no for an answer". With that I got nervous. Of course, they had no metal spoons (not even in the cafeteria). When I came back to tell him the great news he told me in a firm voice……. "Tell my mother to bring me a metal spoon and a cup - she won't forget".
Yes ladies… MOM won't forget. Rhonda just HAD to bring a plastic spoon. What purpose does that serve (other than scooping out strawberry Jell-O). Once he realized I wasn't getting a metal spoon, guess what he did? Grabbed that cup and chunked ice into his mouth. PANIC sets in and I start yelling "spit it out… spit it out…" He's spitting, laughing, etc. I'm not finding it so funny. I grab the suction and proceed to take any moisture out of his mouth for fear he would aspirate. After the attitude and chaos, I was done. Toooo much drama on a Monday night. So, by this email, you should be able to tell he's doing better. His spirit has more fire and he's getting spunky. (It's Kim's fault… everyone just say that over and over). :) I can't wait to see what kind of excitement we'll see tomorrow. Please… no feeding Eric. Even if he tells you he can have that cracker? Don't do it!! :)
Saturday, April 5, 2008
April 5, 2008
The kids just left the hospital. They had a nice hour long visit in Eric's room. It was emotional... They crawled up in bed with him and told them how much they miss him. They asked the typical child-like questions... What's this, what's that, how long til you come home...
It was heart wrenching for me and Carol but good for the kids. They were very happy to spend time with him. Carol just left to take them home and I'm staying a little longer. Eric's sleeping like a baby.
I'm going to sit him up in a bit. The "OT girls" told me he should sit on the edge of the bed, even on the weekend when they're not here, so I'm going to wrestle a nurse to help me do it.
It's so hard for Eric to communicate. Last night when I was leaving, he tried to tell me something. He couldn't get the words out and I couldn't understand what he was trying to say. He got frustrated, I got frustrated....
Its so hard. I'm having a really hard time right now. All the emotions have finally worked their way out and now I can't seem to control them. I guess you can only be strong for so long, huh? So, as usual, I'm sitting here crying my eyes out trying to type on the blackberry. Eric is getting used to the tears. Pray for me. I need strength now more than ever. No one ever imagines that their lives could be turned upside-down in the blink of an eye. Love each other like you've never loved before. Life is so short and can be so unfair.
Thursday, April 3, 2008
April 3, 2008
Today was a busy and productive day! Cheryl and Martha helped to sit him on the edge of the bed. They're working on his balance and strength. For Eric to sit upright and lift his head is a chore. He then spent an hour and 1/2 sitting in this cool wheelchair. Cheryl made the oxygen and IV portable and we took him for a spin. It was his first time out of the room. He enjoyed it but boy is he worn out. He's snoozing hard right now. When he sleeps his weak leg twitches a lot. The therapist said that's a good sign... The nerves are healing themselves. Baby steps....
Jarrod and Mary left this morning. I'm sure that was emotional for both Jarrod and Eric. It was a great visit though. Carol and Erica were planning on taking a big, long nap today. :)
Wednesday, April 2, 2008
April 2, 2008
I spent some time talking to Eric's doctor today regarding his tests. The MRI and EEG showed no additional problems. There were no positive changes yet but he said it could take 6 months to a year from the brain to start healing itself.
Jarrod came in and gave Eric a shave. It was sweet!! I took a picture and plan to send it to Tom to load on the website. Dr. Hunter is going to allow the kids to visit Eric. He's checking to see if he can get clearance for them to come into his room so he can remain hooked up to his goodies (oxygen, monitors, etc.). That would be awesome!!!
PT and OT came in today and sat Eric up on the side of the bed, then into his new wheelchair. He stood the wheelchair for about 20 minutes then asked to go back to bed. While he was sitting up, they worked with him on posture and balance. It doesn't take much to wear him out. He's been asleep for about 2 hours now. I've been working at the hospital today so I could check out all the cool things they're doing to him. The speech therapist also told me that he coughed a bit today when they suctioned his trach. This is a HUGE accomplishment and very exciting news. Eric also pulled his right leg up a bit when they turned him on his side. Another huge accomplishment! The staff here is wonderful and I'm so happy with the care he's receiving. I know Eric is too.
Tuesday, April 1, 2008
April 1, 2008
Eric continues to get stronger. By the time I get to the hospital, he's worn out from Physical Therapy and all the activities of the day. They ordered him a special wheelchair today which they're hoping to get him in tomorrow. If he can get a little more mobile (sitting up more, etc) it will dramatically help with the secretions in his lungs. He has a follow up MRI tomorrow morning and a hip X-ray. The MRI is just for precaution and the hip X-ray is because he's experiencing pain when they do sit him up. The doctor thinks its bursitis.
Eric told me last night that he really misses the kids. I'm going to talk to his doctor tomorrow to see if we can bring the kids up for a quick visit. If he's in the wheelchair, they could possibly let the kids see him in their conference room. We'll see---keep your fingers crossed.
He can have visitors (a couple folks have sent emails inquiring) so if you'd like to drop in for a visit, feel free to! I'm sure it would lift his spirits. Eric's cousin Morgan left today. Jarrod is staying until Thursday. The kids are really enjoying having their cousins there. They've been having a ball. Little Zach and Bryce have been providing that baby fix that I need too!! :) I hope this update finds everyone well....
Sunday, March 30, 2008
March 30, 2008
Yesterday was one of the first times I can truly say that Eric Lacey was more like his old self. His cousins (Morgan, Jarrod and families) are in town. He lit up when he saw them. They joked and laughed and gave him a sense of normalcy. Just what the doctor ordered. They're up there again today and I'm at home catching up on work and listening to 3 boys shoot "guns", 2 baby boys screaming with delight and a little girl that just wants to fit in with all the boys. Calgon? Ha-ha.
It's actually nice to hear a buzz about the house. I know Eric would love to be piled up here in the midst of all the action. I'm heading up there later for my nightly cuddle (I can actually get in bed with him at the new digs) and to close out the day with a little peace and quiet. He told me last night it broke his heart when I left each day. That's probably the most difficult time we've had so far…
The juggling act is becoming more and more difficult. Hopefully God will help me balance everything so I can spend enough time with Eric, the kids and work to keep everyone happy. *sigh* I need a massage. ;)
Friday, March 28, 2008
March 28, 2009
No news is good news.... Sorry for missing a day of updates. Eric is settling in fine to his new "home away from home". The staff at Select is unbelievable and have made us feel so good about him being there. All assessments are completed and now the "real work" begins.
Eric's cousins (aka brothers) are coming into town tomorrow for a week. I think seeing them will definitely lift Eric's spirits. They won't let him sleep through a visit!! I started opening cards with Eric last night.
Wow---I am amazed at how many of you have sent cards, prayers and well wishes. Some of Eric's customers and friends he's worked with throughout the years have mailed cards and letters. It made him so happy. He's having a tough time processing all of this, as you can imagine. Hearing how many folks care about him and miss him does his heart good. I cry as I read the comments on the blog as well as the cards that arrive. I'm planning on printing all of this once Eric's better so he can recapture lost time and also see how many people are praying for his recovery. Its remarkable how friends have come into our lives and are now playing such important roles in Eric's care (and keeping me sane)! We will never be able to thank all of you enough.
Now--I'm off to the hospital. Getting back into the swing of things at work this week has been difficult. I know how much he needs me right now but we'll make it. How could we not with all of this awesome support!!!
Much love,
Rhonda
Wednesday, March 26, 2008
March 26, 2008
Eric is getting settled into his new pad at Select Specialty! So far, so good. They sedated him for the ambulance ride so he's very sleepy at the moment. I'm getting ready to start filling paperwork, etc.
Eric is down to 131 pounds. For those of you that want to visit, I just want you to be prepared. He can not talk at all unless he has his valve on and even then its hard to understand what he's saying. He has no energy at all and can not eat. He has a feeding tube where they pour "Boost" 3 times a day. I'm notorious for taking snacks for folks at the hospital... Don't be surprised if he sleeps through your visit.
They are doing a lot of evaluations this afternoon and tomorrow and that really wears him out. No kids under 12 can visit (including my kids unfortunately) and I think there are purposely no chairs in his room---oh my back. :) Select is located on the 6th floor of Durham Regional Hospital. You must check and sign in at the desk. I'm not sure if they limit visitors but I'll ask.
Address:
Select Specialty
3643 North Roxboro Rd
Durham, NC 27704
Room 6228
Tuesday, March 25, 2008
March 25, 2008
Eric has been accepted into Select Rehab at Durham Regional Hospital. Select provides more intensive care than Durham Rehab Institute (ICU skilled nurses, Respiratory Therapists, etc.). This will be a great stepping stone to actual rehab and also provide physical therapy as a gradual process to improve Eric's muscle tone and movement.
Overall he's better… blood pressure looks good, oxygen level is good, he's getting more strength in his grip and coughing a little bit! (Internal coughing within diaphragm). We're waiting on his doctor now to give him the once over and approve his release tomorrow. Eric did not have another stroke Sunday. We were fearing that was happening but the CT scan showed all is good and he was reacting to sitting up more than to anything else when his pressure dropped so much. He does appear to have another infection and we're waiting on the lab results to see what and how to treat it.
Carol and I are so excited for him to have a change of scenery as well as step up his rehabilitation. He's in good spirits today. I've been joking with him a lot this afternoon and telling him stories about what the kids have been doing the past couple of days. Garrett's starting to "notice" the female anatomy. (I'm sure he wouldn't appreciate Mom posting this information!!) When I told Eric what Garrett said, he just cracked up. Happiest I've seen him in a long time.
Anyway, we're looking forward to tomorrow! Our good friends Kim, Susan and Christine all work at Select so it will be nice to know folks will be checking on him constantly! Makes me feel more at ease to say the least. I'll continue to keep everyone updated!
Rhonda Lacey
March 25, 2008
Rhonda was out of town yesterday, so I wanted to give you an update on how Eric was doing. I don't have any news from his doctors, but he and I sat and looked through pictures that Rhonda had taken from Easter and from Garrett's birthday. He seemed to really enjoy that. Although Eric has a little difficulty carrying on a conversation, he can still talk, and I know that he especially enjoyed the pictures of the kids.
Rhonda will be back today, so I am sure she will have some news for us. Until then, keep the prayers and good wishes coming.
Monday, March 24, 2008
March 24, 2008
Carol and I brought the kids up to see Eric today. They didn't get to spend much time with him though... Eric started having a pretty severe headache and his blood pressure shot up right about the time we arrived. Karen (my cousin) rushed over to pick up the kids and Carol and I are still here waiting to talk to the doctor. Eric's also having some problems with the feeding tube. They "think" the food is coming up and aspirating into his lungs. A CT scan showed a small mass (could be fluid, infection...?) in his lung so they put him back on fluids through the IV. These set backs are preventing him from going to Durham Rehab tomorrow but I'd rather him stay put until he's well enough to go. There's something about the weekend... That's when he seems to decline. His pain is better now and he's resting. Keep the prayers coming......
Sunday, March 23, 2008
March 23,2008
Rhonda Writes -
It's 11 p.m. so I'm sure it will be Sunday before Tom gets this email and posts. I wanted to let everyone know that Eric (and I) had a much better day today. He was not confused at all and answered all my questions correctly as I played "Speech Therapist" walking through some of the exercises I've seen them do. He was talking so well that I picked up the phone and called the kids.
He was able to speak to both of them and hear all the bazillion things they were doing on a Saturday at home with my Mom. He talked to each of them for several minutes so by the time I hung up the phone, he was completely worn out. It seemed to boost his spirits though!! Carol and I spent most of the day at the hospital, driving him crazy I'm sure! :) His Dad drove in from Indiana to see him and spent some time this evening with him too.
I hope everyone has a beautiful Easter! After church we're tking Garrett & Erica to the hospital to visit for a bit. I'll try to take a pic or two to post if Eric's still feeling good. Love to everyone!
Saturday, March 22, 2008
March 22, 2008
I apologize for not posting yesterday. It was a tough day emotionally and I couldn't find those positive words.
I met with Eric's neurosurgeon and discussed Eric's prognosis and the past couple of weeks. The weekend of the 8th, Eric had an Ischemic stroke. This occurred while in ICU (a result of his blood pressure dropping so low from the infection). We didn't find out about it for days because there were "differing opinions" regarding what happened. This stroke did not occur in the area where the surgery and first stroke occurred. This was devastating news and Carol and I are still processing it. I spent about 10 hours with Eric yesterday. He's very confused at times and most of the day has no energy whatsoever to talk or interact.
The step down unit is very different than the ICU. One of his ICU nurses (Jeremiah) came to see how Eric was doing last night. When I saw him I just broke down. He asked if they'd been suctioning Eric's trach regularly and he proceeded to put gloves on and do it himself. The ICU is very aggressive in patient care and improvement. The step down room are exactly that... Step downs.
He is supposed to be going to rehab Monday morning. Carol thinks once he has a change of scenery and is "physically" working towards progress, we'll see huge changes in him. I pray that's the case. I need to see Eric's spark again and know that everything is going to be okay.
Thursday, March 20, 2008
March 20, 2008
Carol spent the day with Eric. I'm very under the weather so I'm staying at home to prevent getting Eric sick. I called his nurse last night and she gave him the phone so the kids could say goodnight and tell them they love him. It was really sweet. It was nice to be able to tell him goodnight myself since I spent my first day away from him. Carol said PT, OT and Speech all gave him a work out this morning. He had his trach balloon deflated and the cap on so he could talk some. Carol called the house so I was also able to talk to him today too. She said his spirits are a little better today. My girlfriend Pam sent me an email with the below quote which I thought was perfect to put on the blog.
"Our lives are not determined by what happens to us, but by how we react to what happens; not by what life brings to us, but by the attitude we bring to life. A positive attitude causes a chain reaction of positive thoughts, events and outcomes. It is a catalyst...a spark that creates extraordinary results."
Wednesday, March 19, 2008
March 19, 2008
This morning, Eric was experiencing more issues with his blood pressure and heart rate. His blood pressure keeps dropping so the nurses have put him back on the blood pressure medication. He had speech therapy this morning and they said he was doing really well in that area. PT and OT have not been in yet. Kim did another Raiki treatment today.
We're hoping Eric isn't losing his spirit. He's really down and we're trying everything to keep him encouraged and motivated. Last night I pulled the recliner up next to his bed and turned on American Idol. One of our favorite things to do is watch and "critique" the singers (because we're experts, don't cha know!). I couldn't even get him to turn towards the TV. I know he's tired of being in bed.
Please pray for him to find the energy and strength he's going to need to plow through the next few weeks. Please also pray that I find the words to comfort him and provide additional strength to help him through this journey.
Tuesday, March 18, 2008
March 18, 2008
Guess what???? Eric's going to the step down room TODAY!!! He's doing so good that they think he's ready to leave ICU. I have mixed feelings about it. Its nice knowing that he has someone literally watching him 24/7.
The step down is a private room and usually one nurse has 3 patients. Still a good ratio but I'm a Nervous Nellie. They would still like to limit visitors to family members for a while longer. He had such bad luck with the infection and his immune system is still weak. Once he's stronger and in rehab, he should be able to have visitors. The big par-tay will be planned for later this summer and we want everyone reading this blog to attend. :)
It's a great day, isn't it? Eric's still really tired but I'm trying to get him excited about going into his own room. He just looks at me and Carol like we need to calm down. Ha-ha. We thank God every minute for answered prayers. He has guided so many people and will continue to do so until Eric is home. His love is amazing.
Monday, March 17, 2008
March 17, 2008
Eric's a worn out pup today. Yesterday was a big day full of activities. He had PT and OT come in and then they put him in a wheelchair and got him ready for a visit with the kids. I brought Carol and the kids back up around 5 and we all went out to the courtyard. The kids were really excited to see him! Then they were off to an Easter Egg hunt and I stayed for a while. So, all the excitement took its toll and today he just wants to nap. He's got a slight fever and his heart rate is up a bit but overall he's doing great!!
Sunday, March 16, 2008
March 15, 2008
Eric's been in good spirits today! He had a fever again this morning but for once. Tylenol did the trick. The PT had him up again in a recliner for a while. Tom's wife Stephanie came up to the ICU today disguised as a hairdresser and gave Eric a good buzz. His hair was sooo long. I knew it had to be driving my clean cut husband nuts. He's looks like he's back in basic training again. :)
His Mom and I are with him now doting on him. He's eating it up---or at least that's what we're telling ourselves. His blood pressure is still giving the nurses some grief but all in all he is making it through the weekend without any major issues. That's all we can ask for. I had another lesson in nursing today learning more techniques with the trach. I'm thinking of leaving my career in contract furniture and going into nursing.
Totally kidding... but it is interesting to learn. I feel like I'm married to a miracle. God's precious miracle. Things are really going in the right direction.
Friday, March 14, 2008
March 14, 2008
Eric is still progressing.... They took the trach collar off which was providing oxygen to allow him to completely breathe on his own with no assistance of any kind. PT came in and got him out of the bed and into a recliner. It was a lot of hard work but he's been sitting in it for an hour and a half Carol said!! I'm going up tonight for Friday "date night"...AKA no sweats!!
I try to gussie up a little more when its "date night". We got the thumbs up on Durham Rehab Institute which is located on a floor in Durham Regional Hospital. They had the option of sending him to Durham, Chapel Hill and Raleigh so we're really excited to learn that DRI evaluated him and felt he was a good candidate for their facility. We have several good friends that work at Durham Regional's Select Rehab facility, also located in the hospital so he'll have lots of folks checking in on him.
No word yet when he'll be out of the ICU but hopefully he'll be able to go straight into the rehab facility. The biggest issues right now are swallowing and his right arm and leg. He has no gag reflex which means he can't control swallowing. The trach assisted in breathing but also has an inflatable tube that protects his lungs from liquid coming down through the windpipe. If you deflate the tube, it allows air to pass over his vocal chords which then allows him to talk. They're teaching me to do this and cap the trach. The allows air to come in through the trach and out through his mouth. The speech therapist will work with Eric on building his muscles to learn literally how to swallow again. Until he can do it on his own, the trach and feeding tube (in his stomach) will stay in place.
Regarding his arm and leg---he is beginning to use his arm more but still has no movement in his leg. He's always been weaker on the right side, but the downturn he experienced last weekend made it much worse. His vitals dropped so low that it made current conditions worsen. He's got his work cut out for him, but Eric's never backed away from a challenge....
Thursday, March 13, 2008
March 13, 2008
Another great day!! We're on a roll. They took the drain out this morning. When I got to the hospital, Eric had already seen the Speech, Occupational and Physical Therapists. He was WORN OUT!! I took my laptop today and showed him the blog for the first time today and let him look through the pictures. He was very impressed!! Keep the pictures coming! He really enjoyed looking at them. I told him we needed to grow the mullet again.... Ha-Ha. Chick magnet. His neurosurgeon came in and said everything is looking good!!
Wednesday, March 12, 2008
March 12, 2008 - Afternoon
Garrett and Erica got to spend time with Eric today!!!! They wheeled his bed out by the patient elevator windows this afternoon so he could see them. The Respiratory Specialist was with Eric's nurse and he deflated the tube in Eric's trach so he could say something. His first words???? "Luke--I am your father". Classic Eric. Garrett thought that was pretty funny. He had a hard time talking but once the kids were gone, they practiced with him a little more and he did great! Hearing his voice again was music to my ears. The kids did well seeing him. Erica was a little shy at first but not Garrett. He was quizzing the nurse on every tube, machine, fluid and monitor reading that he saw. They both held Eric's hand and kissed him. It was beautiful. Now that the kids are gone, we're back in his "room". He is getting a blood transfusion tomorrow. They think it will help strengthen him a bit. He looks great and seems happy. I'm definitely happy!!!!! Whoo Hoo!!!!
March 12, 2008
Carol is at the hospital with Eric and just called to let me know how things are going. He's still making great progress. The have taken him off of the ventilator and only providing a little oxygen by means of a trach collar now. Carol gave him a ball to squeeze with his right hand (right side has been affected by the stroke) and he threw it out in the hall! Two days ago he couldn't squeeze my hand with his right hand so this is exciting news!! He's wearing a "boot" on his right leg to keep the tendons stretched. He still doesn't have much movement in his leg but rehab will hopefully change that! They have turned the drain (shunt) off and will hopefully remove it today or tomorrow since there is no more signs of fluid building up on his brain. His lungs are looking better and still no fever. OT (Occupational Therapist) and PT (Physical Therapist) have both been in to work with him today. The doctors said that we should be able to bring the kids up to see him this afternoon as long as everything stays on track. They will help Eric into a recliner and wheel him by the back patient elevators for a quick visit. Isn't that wonderful???? I know Eric's ready to see them and they're definitely ready to see him. He's doing great other than being bored and tired. :) He was mouthing the words to the Chili's theme song last night… "I want my baby back, baby back, baby back…" We were actually having a good time!! He's coming back to us slowly but surely.
Tuesday, March 11, 2008
March 11, 2008
Eric's is showing a lot of improvement today. The antibiotics are doing their job regarding the bacterial infection in his lungs and his fever is gone. He's so much more alert today mouthing works to be...getting frustrated because I can't understand what he's saying.... :) He has gained some more weight (up to 151 lbs!) and is indeed the model patient. He's got "the hot nurse" today so I'm sure he's trying extra hard to make her happy. Hee hee! All in all it has been a great day with great progress! Still waiting on the MRI results but hopefully we'll know something tonight. His neurosurgeon is in surgery and I'm waiting on his visit to the ICU. Will update more later.
Monday, March 10, 2008
March 10, 2008
Here is the latest... although we don't know much more.
Eric is downstairs now having another MRI of his brain. The MRI will show every detail just to rule out another stroke. The meningitis test came back negative which is GREAT! He's still very weak but he is looking at us like he sees us today. I know that sounds odd but over the weekend he didn't. He was very glazed over and it appeared that he could not see us. Once he's back from MRI, they will hook up an EKG to check for seizures. It almost looks like he's having hiccups (which is one of the issues that lead them to check the brain to begin with when he was having stomach problems). Whatever bacterial infection he has "acquired" is taking a toll on his body. They're having a hard time controlling his fever and vitals. He's on medication to elevate his blood pressure until they rule of the stroke (which I thought they did yesterday but apparently a CT scan can miss some things). I hope it's only a bacterial infection. That's scary in itself but treatable. Our friend Kim has been coming in giving Eric Raiki treatments and she's coming back this evening. Positive energy.... I pray with him every day. I keep telling myself it's only been two weeks since he had the stroke and he came so very close to losing his life. It's going to take more time for him to get stronger. He just really needs a break from all of these other problems preventing him from working on the real issues.
Sunday, March 9, 2008
March 9, 2008
Eric's not doing well. He's having his second CT scan, he's back on the ventilator and they put the shunt back in b/c the first CT showed fluid on his brain again. While I was typing he returned from the scan...no additional fluid, no blood which means no second stroke which we were all worried about. They are testing him for spinal menangitis and his pneumonia is much worse again. He just can't win. There's a group of folks here from our church praying, I'm praying, his Mom and I are praying together..... He will pull through this.
Saturday, March 8, 2008
March 8, 2008
The rollercoaster is going back up that hill.... Today we've seem a slight decline in Eric's responsiveness. He's having a lot of problems with his vision (which has been going on all week) and overall, I think he's just not feeling as good today as he was yesterday. The ventilator is still turned off and he has just a little oxygen flowing into the trach by means of a "trach collar". He worked pretty hard yesterday and managed to lift his back off the bed! Today, between that and the surgery yesterday, I think he's just tired. It scared us to death when we walked in because he was so alert last night and even managed to write a word with his left hand on a piece of paper. Today I couldn't even get a thumbs up. The doctor said this is a very normal course for stroke patients. They will have great days and then days where they just won't do much at all. It's just so emotional for me and Carol. We're standing at his bed, both crying. He probably thinks we've lost our minds. He's drifting off to sleep now-hoping I'm sure, that we'll be quiet and let him rest.
March 8, 2008
Eric's breathing on his own!!! Ventilator has been turned off for 30 minutes. He's also acting more like Eric. Yea!!
March 8, 2008
Eric has a tear on his vocal chord, probably from pulling the tube out. They saw it when they scoped for the trach. He's going down now for a CT scan to check it out again. Doc said it should heal on its own in time if its not too bad. Physical therapy starts tomorrow. They're going to (hopefully) get him out of bed!!!! Everything is going fine. He's still shooting the bird--this time at his Mom. It's killing me. We can't help but laugh.
Friday, March 7, 2008
March 7, 2008 - From Phoenix Airport
I am sitting in the airport in Phoenix waiting for my connection to Las Vegas. I have to laugh about Eric flipping Rhonda off....it MUST be the drugs. The Eric we know and love simply would never have done such a thing. ;-)
Rhonda tells me he is going to be out of the ICU soon, and I am looking forward to seeing him again. I know we all are. I have greatly appreciated reading the comments on this blog from all Eric's friends and loved ones. Keep 'em coming...
seeya, and plan on being at the welcome home party for Eric whenever it might be...
March 7, 2008
Eric's surgery was delayed until 2:00. He just got out and everything went well. They still have him on the ventilator but around 5:00 pm, they're going to see how he does without it. He's experiencing some delirium and that's probably why he tried to pull the tube out yesterday. Most of the time this is a result of days in the ICU with little sleep and being confined to the bed. He tried to pull it out again today when I was in the room and when I jumped up and "scolded" him he scowled and shooed me away. He later flipped me the bird (can you believe that???). Hopefully we're not seeing a permanent personality change. Ha-ha! Chalk it up to being delirious. Carol and I are in the waiting room waiting for him to wake up a little before we go back to see him. Hopefully this will be much for comfortable for him. The doctors are going to wean him off all sedation drugs but it could take a while to completely flush through his system. He's showing signs of pituitary damage (a result of the area of the brain the blood clot was) but again, they hope this is short-term. Tom, our resident blog-man, is on a business trip in Vegas but says he will still post for us. What a good guy!!! Thanks for everyone's support.
(Sent from my Blackberry...please excuse spelling errors)
Thursday, March 6, 2008
March 6, 2008 - Evening
Duke just called me... Eric pulled his breathing tube out again!!!! They had him restrained and he still managed to do it. Those of you that know Eric know that he's not rowdy or the type that would deliberately go against what is right so I've come to the conclusion that its the sedation drugs making him loopy. They are still putting the trach in tomorrow. While the tube was out he did talk to them. They told him they had to put the tube back in--- he laughed and said "yeah, I know". *shrug* He's GOT to behave. ;)
March 6, 2008
IS THIS A BEAUTIFUL DAY OR WHAT???
I'm walking around with a big ole grin on my face… The neurosurgeon removed Eric's shunt this morning. There is no more swelling or fluids that shouldn't be there. He's doing so well and having such a good day. An Occupational Therapist came in for an evaluation this morning. He's having difficulty with his right arm and hand but definitely stronger than before. He smiled constantly today. Even with the breathing tube in, it was the most beautiful smile I've ever seen. What a wonderful birthday gift for Garrett… I can't wait to tell him how well his Daddy is doing. Tomorrow morning is the surgery for the trach/feeding tube and Eric's hybrid "doctor/nurse" said he's betting Eric will be off the ventilator tomorrow. The staff at Duke have been so good to Eric and to us… I know I'm always in their way but they don't seem to mind. I've grown attached to them…the ICU is my home away from home. Once Eric's off the ventilator, he'll be able to leave the ICU and go into what's called a step-down room. We're all looking forward to that. We've received over 100 cards. I haven't opened the first one… I want him to open and read them himself. I know he'll be overwhelmed by the love, support and concern our friends have shown. I feel like prayers are being answered every day. If this doesn't prove to everyone just what God is capable of, I don't know what would.
March 5, 2008 - Evening
I wasn’t able to stay away from Duke today. I had to go for a quick visit tonight. Eric’s still doing well. His surgery is scheduled for Friday morning (trach/feeding tube) and they expect it to go smoothly with no complications. He still has a low grade fever and developed a Urinary Tract Infection. The antibiotics that he’s been on should take care of it. He’s in the holding pattern. The ICU staff is just making him “comfortable” until the breathing tube can be removed. The trach will be so much more comfortable. Garrett’s birthday is tomorrow. He’s really missing his Dad and doesn’t understand why he can’t see him. Hopefully next week they’ll be able to wheel Eric out of the ICU long enough for a quick visit with the kids. We’re all working towards that. Thank you for everyone’s prayers.
Wednesday, March 5, 2008
March 5, 2008
Eric's status hasn't changed much since yesterday evening. They're trying to keep him "comfortable" until he can have the surgery for the trach. He's hardly drained overnight from the shunt so he may have that removed before his surgery. We're in a holding pattern right now… He sleeps most of the time which is good. At least that way he's not so miserable. I'm not able to go to the hospital today. I guess my immune system has taken a hit… I woke up with a nasty sore throat today. I'll call and check on him though and provide updates that I get from his nurse.
Tuesday, March 4, 2008
March 4, 2008 - Evening
I just met with the ENT (Ear Nose Throat) surgeon. Eric is having a little difficulty with his lung preventing the removal of the chest tube. The surgeons can't do the trach/feeding tube surgery until Thursday or Friday. Neurologically, Eric continues to do great. He's following commands (hold up 2 fingers, wiggle your toes, etc.). They have told me tonight that he is showing signs of paralysis on one side of his throat. This may not be permanent but is going to make the swallowing/speech therapy more of a challenge. It will probably be another week before Eric can talk. The first trach will operate with a ventilator. The doctors want to be confident that he has the ability to breathe on his own. Hopefully he can come off of that and they will install another smaller trach with a "voice tube" that will allow Eric to talk. They've put in orders to start physical therapy in the ICU which is exciting. His muscle mass has deteriorated quite a bit and he's down to 142 pounds.
March 4, 2008
Eric’s still stable as far as his vital and physiological tests go. The doctors are having trouble with his medications… finding the right one that doesn’t completely sedate him, but makes him comfortable. Eric’s a light weight when it comes to these drugs. Last night he had a fever of 101 which is probably the result of some lingering pneumonia. The plan is to remove the shunt (that’s draining fluid preventing swelling in his brain) in a couple of days. When he’s somewhat sedated, his blood pressure stays very normal. When they wean him from the sedation, he becomes “rowdy” and tries to get up. We’re hoping the tracheotomy will happen by Thursday and swallowing therapy can begin. He still has no gag reflex but some cough reflex. The doctors feel like he’ll regain this it’s just going to take time. I wish therapy could begin so he can work on his strength and just feel better in that bed. I’ve began the OT process again (in my little world, I’ve become a nurse, occupational therapist, master of all things in the ICU) bending and lifting his arms and legs if for no other reason than to give him some comfort. I’ve started massaging his shoulders and legs and what I can reach of his back. I told him yesterday not to get used to this… J The road ahead of us is long with several bends that we can’t see around. It’s frustrating for everyone just not knowing. I know God knows and I’m trusting in Him to bring us all through this. Carol and I are splitting up today. She’s there now with him and I go in at 4:00 for the night shift. Maybe I can get a rise out of him by making him watch “What Not To Wear” or some other chick show on TLC. Keep praying for his body to heal, his patience in that bed and his overall well being. When I know more later today I’ll get another posting out there.
Monday, March 3, 2008
March 3, 2008
Well..... Mr Lacey is doing fantastic!!! Prayers are being answered. The pneumonia is clearing up and they're weaning him off the sedation drugs. What does that mean for me and Carol? He's so alert that he's trying to get out of bed. He's totally freaking his Mom out since he's still on the vent. I love it though because he's getting fired up and I know he's making that journey back to us. :) I'm overwhelmed at the folks that are sending cards and doing things for us. Carol and I want to thank everyone for that extra 10 pounds from all the AWESOME food being dropped off. I will never be able to thank all of you enough. I've even heard from folks in Eric's high school graduating class. You Hoosiers "ain't too bad"!! I hung pictures in the ICU room so Eric could see the kids. Erica's Sunday school class made cards for him yesterday and I showed them all to him. I can't begin to thank everyone enough for the prayers. We feel each and every one of them. It's amazing to see how God is working in all of our lives. Well, I've got to sign off for now and try to hold Eric down so they don't restrain him again. Keep him in line! Love to everyone!!!
Sunday, March 2, 2008
March 2, 2008
MUCH BETTER DAY so far... I'll email more details later but in general there is improvement. Woo Hoo!!!!!
Saturday, March 1, 2008
March 1, 2008 - Evening
Eric now has the chest tube in. Its tiny. They're calling it a "test" tube. Some new, exciting technology. He has more tubes now than the medical law should allow. He's in pain but they're giving him good drugs. He's starting to get pretty frustrated that he can't communicate. Slight nods and holding up a finger or two just isn't cutting it anymore. He's just tired---tired of laying in that bed, tired of the ventilator, tired of the restraints. I see his spirit returning in his eyes though. It gives me reassurance that he's going to be alright. I showed him pictures of Garrett and Erica that our friend Amy took of them today and he tried to smile. I know he misses them and they REALLY miss him. Keep the prayers coming. I know God is answering them. His will---that's what I pray for as hard as it may be at times. Eric has a purpose or he wouldn't have made it this far. I can't wait to see what evolves from this. Our faith has been tested yet at the same time its drawing us closer to Him and to each other.
March 1, 2008
Another small set back this morning. Eric's lung has collapsed (spontaneous pneumothorax). This was caused by the pneumonia. They will insert a chest tube shortly to relieve the pressure and allow the lung to re-expand. He's oxygenating well though which is positive and has no fever. My poor baby. He can't focus on the neurological issues for dealing with all of this other things. They have him sedated so he's resting...
Friday, February 29, 2008
February 29 2008
Tough morning!!! Eric pulled his tube out this morning around 5:30 a.m. and swallowed secretions and has taken about 20 steps backwards. The Pneumonia has climbed to a different level now and his blood pressure dropped dangerously low. They've doubled his antibiotics and are now giving him medications to "raise" his pressure instead of lower. He's even weaker than yesterday after the trauma this morning. The breathing tube will stay in until at least Monday. Even then they think the trach will be needed. He's lost 10 more pounds. He's still responding to everyone with thumbs up and squeezes. Our good friends Susan and Kim are Occupational Therapists and have offered to start coming to the ICU to work with him but the doctors say he's just too critical for that. They don't even want me lifting his arms or legs anymore like I had been doing. We're still praying for improvement. I have hope because of Eric's will and God's will. We've heard from so many people. Eric's on prayer chains from Canada to Florida and California to New England. The strength we feel from others is amazing. We're so fortunate to have the network of friends that we do and family too which goes without saying. Eric's Mom is holding up best that she can. She's focusing a lot of attention on Garrett and Erica. I think its giving her strength. The kids are doing okay. Garrett's having a more difficult time because of his age and the fact that he's so close to his Daddy. Me? I'm a total basket case living day to day and driving these doctors and nurses absolutely crazy. Pray for all of us... our health and our mental status so that we may stay strong for Eric.
February 28, 2008
They're allowing more fluids to release from his brain to keep the swelling down and took him off some of the meds. He is still bleeding some but they've got it under control. He's not on any pain or sedation drugs. He's wiggling toes and giving us the thumbs up and squeezing my hand really tight. HUGE improvement over last night. I'm so happy. Day by day......
Trey's Prayer
Last night, Trey came downstairs after bed and asked me where the duct tape was. I asked him why and he said that he said he was praying and asked God that if he could keep his hands folded in prayer all night, that God might see to it that Eric would get better faster. I could not say no. He was very sure of what he was doing so I gave in and taped his hands for him. After he went to sleep, I checked on him and decided to take a picture for you just to remind you that the prayers are always coming no matter what size the person is. We love you and you are constantly in our prayers and in our hearts.
Thursday, February 28, 2008
Wednesday, February 27, 2008
February 27, 2008
He's back on the breathing tube. He has some more fluids and blood building up in his brain but they are constantly draining it through the shunt. He's developed pneumonia and therefore is in isolation which just means you have to gown up and wear gloves when you're with him. They're putting in a central line (in his neck) because his veins are fatigued and not accepting a pic line (which is similar to an arterial line that brings fluids and medication into his bloodstream). He's very quiet today. Its just been a stressful day to say the least. His blood pressure is stable now, which is good and he doesn't seem to be in any pain. He's so helpless though. My heart is breaking.
His cousins Jarrod and Morgan both flew in. No one but me and Carol are allowed back with him, though.
Keep the prayers coming. The doctors say that he has a long road to recovery with LOTS of physical and speech therapy ahead of him. His brain seems to be functioning well but he has lots of mechanical issues (moving his arms and legs and speech, etc.) He has no gag reflex and failed a swallowing test yesterday -which means he'll be on a feeding tube for a while. They also told us yesterday that what happened Sunday was a type of stroke. He's strong and will pull through this. He's made it this far against all odds. My love for him has grown so much too. God has brought us back together. I know he won't take him away.
I love you guys.
Tuesday, February 26, 2008
February 26 2008 - Afternoon
Eric has had a rough afternoon. He is struggling a little today, and is frustrated and distressed over what has happened. He doesn't have memory of the past several days, and does not remember either of the surgeries that he has been through. His doctors have indicated that he is neurologically in good shape, but that physiologically he has a lot of recovery in front of him. This might mean weeks / months of physical therapy - it is really too early to tell.
Right now Eric is still in the NeuroSurgery ICU, and only Rhonda and his mom are allowed back to see him. Tom and Autumn, his step-dad and sister are back down from Indiana, and other family member are due in today. Garrett and Erica and doing well, but do not yet know a lot about what is going on.
Eric's recovery time looks like it will be a lot longer than we had hoped. I do not doubt, however that he will recover. He woke up fighting, and I believe he will continue to do so. Please keep visiting this site to get updates on how he is doing, how the Lacey family is doing, and when we can expect to see Eric at home again.
February 26 2008
Email from Rhonda
Some of you are not aware of the complications that occurred yesterday with Eric. Some of you may not even be aware that Eric had a tumor removed Thursday that was diagnosed as cancerous. The tumor was not an Ependymoma like they thought, but was a vascular tumor in his brain stem. It was a very difficult surgery but Eric pulled through it and went home a day earlier than expected (Saturday). Sunday he began having a lot of pain and numbness in his right arm, jaw and temple. It was so severe that we called an ambulance to transport him back to Duke. They realized that the area where the tumor was removed was bleeding internally and the prognosis was not good. We spent the evening not knowing if he would make it. He was not responsive and on a ventilator. Early this morning, things began turning around. It's truly a miracle that Eric's alive. He's so strong and fighting so hard. Please continue to keep him in your prayers. I know he'll be coming home soon. (Read below)
Karen continues below.....
A quick update for all of you. First, thank you so very much for your prayers!!! God is showing his power and love! I now have a little better understanding of what happened last night that I can share. A blood clot separated from the surgery site in the brain stem area, allowing blood to flow from that area and into the brain. He lost consciousness almost immediately after they recognized that something was wrong and EMS took him to Duke’s ED. They drained the blood and put in a shunt. He was admitted to the IDU. The initial report was that he either would make it, or he wouldn’t, and that we’d have to wait until this morning to see if he could come off the ventilator.
During the night he made amazing progress in terms of consciousness/awareness and motor ability. This afternoon, they extubated him (took out the tube connecting him to the ventilator) and he is breathing on his own. He had his usual fun spirit even with the tube in – flirtatiously giving Rhonda that double eye-brow raise when she kissed him. Rhonda and Eric’s mom, Carol, finally went home at 2 p.m. today for showers and to talk with the kids, who are missing their parents and no doubt have question . When Rhonda told him she’d be back at 5 p.m., he responded that he’d be there “with bells on”!
Once again with Eric, the doctors are amazed, and we are giving God all the credit!! We still need lots of prayer. His speech is slurred more than after the initial surgery. The area affected controls the senses. The doctors said Sunday night that if he came though it there would not be a quick recovery. There has been no discussion yet of next steps or what may lie ahead. But we are exceedingly encouraged by his determination and good spirits, as well as by the surprise on the part of the docs!!
Please pray for continued and steady progress, for sufficient attentiveness on the part of his caregivers (they’ve been great!), for God-inspired decision-making, and for God to be glorified in all this. Please also pray for strength and peace for Rhonda, Carol, the kids (Garrett and Erica) and Eric’s dad and sister (Tom and Autumn, who just drove back here from Indiana last night after being here for the surgery last Thursday).
